Joy
Cometh in the Morning—Part 2A/20
AN: This chapter
contains a fairly lengthy medical consultation with the
neonatologist. I did this on purpose, to get the medical info into
the story without having to break up the flow later on. This prenatal
consultation is exactly what I would tell a family, about what to
expect with a sick infant. I generally do these consultations prior
to the birth, so the family knows what to expect. I hope I don’t
bore you with the facts, but it’s important for the next few
chapters of the story. Thanks for
reading.
***********************
Part
2
19:30
Friday, May 19th, 2006
Bethesda Naval
Hospital
Cafeteria
Harm was jostled out of his daydreams by
the sound of children squealing. He looked up from his coffee to see
a young petty officer with 4 small children. The petty officer
approached Harm’s table, “Excuse me, Sir…would you
mind if I borrowed one of the chairs from your table?”
“No,
go right ahead…you look like you have your hands full,”
smiled Harm.
“Yeah, my wife just gave birth to number
five. That leaves me in charge of the tribe for a few days…I
just hope I survive,” he grimaced as one of the kids threw a
cup at her sibling. “You know we never planned on having this
many kids, but somehow God thought otherwise.”
“Yeah,
I guess you’re just lucky that way,” Harm replied with a
fading smile.
“I don’t know if I’d call it
lucky, but it’s never boring,” the petty officer smirked.
“Look, I’m sorry sir…I better run interference
before they destroy the cafeteria,” the petty officer quickly
took off to stop the food fight that was about to ensue.
Harm
continued to watch the young family, muttering to himself, “You
have no idea how lucky you are.” He took a sip of his now cold
coffee and grimaced. A glance at his watch told him he’d
already been gone a half an hour. He thought he should really get
back to Mac, but mused that he might have to watch more of that
movie. He couldn’t comprehend what Mac and Harriet saw in that
actor, what was his name, David…Elliott…James,
something like that. He shook his head, ‘women.’ Now if
the movie had had Catherine Bell in it that would have been a
different story. Something about that actress reminded him of
Mac.
Falling back into his daydreams, he continued to ponder
his marine’s pregnancy course. The medications had stopped the
preterm labor and the leaking of fluid had sealed within 48 hours.
Dr. Abrahms had been able to stop the IV magnesium after a week;
instead changing Mac to meds by mouth. Mac, to her credit, had
remained on strict bedrest just as ordered. In fact, Harm had even
had some fun helping her with a sponge bath or two. He had even snuck
in some contraband food, including hamburgers and steak, when no one
was looking. When Mac questioned his offering of meat, he replied
with a shrug, “I figure if you put on weight then Sophie will
put on weight. What’s more fattening then meat!” Mac
laughed at his logic, but enjoyed the treats nonetheless. An
ultrasound 1 week later showed reaccumulation of some of the amniotic
fluid and Sophie had gained a half of a pound, the burgers were
paying off. A follow-up ultrasound, on May 10th showed that the fluid
level was almost back to normal and Sophie had almost cracked the
10th percentile on the growth curve. Dr Abrahms was happy with Mac’s
progress and even contemplated giving her back bathroom privileges.
All seemed to be progressing according to plan until one week
ago.
***Flashback—Friday, May 12th, 2006***
Harm
walked into Mac’s room during lunchtime. He’d taken an
hour lunch break to come eat with her. When he got close to the bed,
he noticed that Mac was rubbing her leg and grimacing. “What’s
up Marine, muscles getting soft from lounging around in bed,”
he smirked.
“No, thank you very much. My legs just
ache…they’re kind of swollen too,” she grumped as
she pulled back the blankets.
Harm’s eyes widened in
shock when he saw the size of Mac’s feet and ankles, “How
long have they been like that?”
“I don’t
know, since yesterday I guess,” she whined rubbing at her
uncomfortable feet. “You wouldn’t think they would swell
like this when I’ve had them elevated in bed.”
Harm’s
internal alarm started to jiggle, “What does the doctor say
about the swelling?”
“I haven’t had a chance
to tell him yet. He breezed through here so quickly this morning, I’m
not sure he was even here…Harm could you rub some lotion on my
legs and feet; they’re really uncomfortable.”
Harm
nodded and grabbed the lotion from the bedside table, “Is
everything else OK…Your blood pressure isn’t up again is
it? He seemed to remember something about high blood pressure and
swelling from one of the pregnancy books.
“I don’t
think so, the nurse didn’t say anything…but then she
isn’t one of my usual nurses. Sally doesn’t work again
until tomorrow.”
Harm slowly massaged the lotion into
Mac’s legs resulting in a groan from Mac. “Did I hurt
you?” he gentled his touch.
“No, it feels
great…don’t stop…ever!” she said with a
grin. He smiled back, but continued to be concerned. He’d have
to check with the nurse before he left.
Harm gave Mac a full
30-minute leg massage before kissing her goodbye and promising to
return that evening. He stopped at the nurse’s station on the
way down the hall. “Could you please tell me who my wife’s
nurse is today?” Harm questioned the unit clerk.
The
clerk checked the patient assignment board, “Yes Sir…that
would Phyllis…I think she just ran to lunch, can I give her a
message, Sir?”
“Yes, tell her my wife’s legs
are really swollen and I wondered if her blood pressure was OK?”
Harm replied with concern.
“I’m sure it’s
nothing to be concerned about but I’ll pass along the
message…Sorry Sir, I need to grab the phone.”
Harm
nodded and gestured that he’d be back that evening. He was
determined to talk to Dr. Abrahms. His internal alarm was blaring
now, he wanted to get back to the office and check the internet.
Something just didn’t seem right.
***
As Harm
breezed into JAG ops, he ran straight into Harriet Sims. Grabbing her
arms to stabilize the petite blonde, he muttered his apology while
quickly attempting to get to his office computer.
“Captain,
what’s the hurry are you late for court?” Harriet
inquired.
Harm stopped in his tracks and turned towards the
bubbly mother of four. His eyes brightened, as he realized he had
found the ‘fountain of truth’ for the knowledge of all
things pregnant. If anyone would know about swollen legs it would be
Harriet mused Harm as he recalled an earlier incident involving one
pregnant lieutenant, a desk chair and a lunch date. “Harriet,
when you were pregnant with Jimmy your legs were sore and swollen
right?”
“Well yeah, as I recall you were the only
one to show me any sympathy.”
“Did your doctor say
if this was normal?”
“Harm, most women exhibit
swelling in their feet and legs at some point in their pregnancy. Why
do you ask?”
“Mac’s legs were really swollen
today, but you don’t think that’s unusual?” queried
Harm. Please say no he begged with his eyes.
“Well, I
guess not, although with Mac on bedrest it might be a little more
unusual. My legs tended to swell more through the course of the
day.”
“Were they ever swollen after you’d spent
the day with your feet up?” questioned Harm.
Harriet
chuckled and shook her head, “Boy do you have a lot to learn. I
had a preschooler hanging on to said legs, and Bud was still getting
back into stride after his injury…Captain, my feet were never
up!”
Harm laughed back, “I get the picture
Harriet, thanks for the info.”
As he was about to head
to his office, he was intercepted by Petty Officer Coates. “Captain,
the Office of Homeland Security is on line one and the General would
like to see you in his office in 10 minutes.”
Harm
sighed, “Thank you, Jen…I’ll be with the General
shortly.” So much for his internet search he thought. He’d
just have to secure early to make it back to Bethesda before Dr.
Abrahms made rounds.
***
The remainder of the afternoon
had been harried, leaving no time to call Mac and check-in. It was
now 17:30 and he hoped he hadn’t missed the doctor’s
evening rounds as he ran into the hospital. He met up with Dr.
Abrahms just as they both approached Mac’s room. “Doctor,
I’m so glad I caught you. I’m really concerned about the
swelling in Mac’s legs, should we expect that at this
point?”
The doctor looked puzzled, “What
swelling…I was just going to check on Sarah, but the nurse
didn’t mention any swelling? Let me run grab the bedside chart
and I’ll be right in.”
Harm nodded and proceeded
into the room to check on Mac, “Hey Marine, why are the lights
out…it’s kind of dark in here. I just ran into Dr.
Abrahms, he should be right…” Harm paused as he noticed
Mac’s pained expression, “Mac what’s wrong? Are
your legs still bothering you? You know I can rub them again once the
doctor’s done.”
Mac looked up through squinted
eyes and with a soft voice replied, “Yes they still ache, but I
have a wicked headache...that’s why the lights are out.”
Harm
started to pace just as Dr. Abrahms arrived, “Doctor, Mac also
has a headache…” he started at the same time as the
doctor began to speak.
“Sarah, I understand your legs…”
Dr. Abrahms stopped mid sentence. “What did you say Harm…Sarah
has a headache?”
“A real doozy…” Mac
answered quietly so as not to increase the throbbing.
The
doctor anxiously began flipping through the bedside chart to the
vital signs. He sighed, “Guys, we have a problem here.”
Harm’s
eye opened wide, “What’s wrong, now?”
“Sarah’s
blood pressure is markedly elevated again and I suspect the headache
and swelling are associated with a condition called preeclampsia…I’ll
need to run a urine protein sample and some blood chemistries to be
sure…I’m sorry I wasn’t aware of this sooner, but
the nurse taking care of Sarah today isn’t one of our
regulars…I don’t think she noticed the changes in
Sarah’s condition.”
“What do you mean she
didn’t notice,” Harm exploded. “We’ve been on
a tenuous course for weeks, how incompetent can she be,” he
fumed.
“Harm, calm down…my head is killing me,”
Mac grimaced. Harm threw a sheepish look her way in apology. “I
didn’t tell the nurse about the swelling because I didn’t
think it was important…and the headache just started an hour
ago.”
Dr. Abrahms approached the bed and began to
examine his patient. He tested reflexes, pushed on her abdomen and
checked her eyes. “Alright Sarah, let me get something ordered
for your headache and we’ll get those labs sent…I’ll
be back to talk to you both in about an hour once I have the
results.” The doctor breezed out of the room to find the
nurse.
Harm circled back to the bed and sank restlessly into
the bedside chair. Mac peered up and grabbed his hand to still his
movements. “Harm, you need to calm down…your nervousness
isn’t helping you or me,” she whispered.
“Sorry,
I just can’t believe after things were starting to look up…”
his voice cracked. “Sarah, I’m just so scared…what
if…”
“I know Sailor, but I really need you
to keep it together for both Sophie and me right now…I don’t
feel well enough to be the strong one,” she grimaced with tears
collecting in her eyes.
“Hey, hey don’t
worry…we’ll get through this too. We’ve survived
the last 11 weeks of ups and downs, I’m not going quit now,”
he settled onto the bed beside her and pulled her close. “Dr.
Abrahms just needs to give us the next battle plan,” he placed
a gentle kiss on her temple. “Just lie back and rest until the
nurse comes back with your pain meds.”
A few minutes
later, the nurse arrived with supplies in hand. “I’m
sorry Captain but you’ll have to move while I collect the
Colonel’s blood and urine samples. Sarah, I’m going to
need to start an IV again and catheterize you to collect a 24-hour
urine sample. Dr. Abrahms wants me to restart the magnesium
drip.”
Harm began to pace the small room. “Why are
you starting magnesium again, she’s not in labor?” His
fingers now running through his hair at a feverish pace. “And
why didn’t you note all these changes earlier, you should have
been paying closer attention…”
“Harm,
STOP!!” Mac cried. “You need to calm down, this isn’t
helping…why don’t you go down to the cafeteria while the
nurse does these procedures.”
“I’m not
leaving you.”
“Sir, you’re upsetting your
wife and that will only exacerbate her high blood pressure…she
needs to stay calm. Why don’t you do as she suggested and get
something to eat…Dr. Abrahms won’t be back for at least
an hour…I promise to page you if he comes sooner.”
Harm’s
eyes pleaded with Mac to stay, but she slowly shook her head ‘no.’
He could see the pain in her eyes and finally acquiesced. Grabbing
his jacket, he headed for the door, “I’ll be back in 30
minutes. Hang in there…I love you.”
When Harm
returned 30 minutes later Mac was sleeping quietly. He settled into
the chair to wait for the doctor’s return. Dr. Abrahms entered
the room shortly thereafter with a solemn look on his face. Harm
gently aroused Mac from her sleep, “Honey, the doctor’s
here…you need to wake up so we can talk.” Mac slowly
stirred and then quickly came to attention as she noticed Dr.
Abrahms’ expression.
“Sarah…Harm, I have
some good news and some bad news. The bad news is that the lab work
confirms the diagnosis of preeclampsia. As you know, Sarah, you
developed hypertension early in pregnancy. This had previously been
well controlled with medication. However, your blood pressure is
again elevated despite the meds, and you are now spilling protein in
your urine, the 24-hour urine sample with tell us to what extent.
This setback will most likely alter our management plans for
delivery.”
“What do you mean by alter, I thought
you wanted to get to at least 32 weeks and hopefully longer before
Sophie is born…Mac’s only 29 weeks now…you aren’t
planning on delivering her now are you?” Harm nervously
questioned.
“No I don’t plan to deliver the baby
tonight…but I don’t know that we’ll make it to 32
weeks either. The good news is that Sarah’s liver functions and
platelets are normal…if they had been affected I would have
been forced to intervene sooner. For the time being, I’ve
restarted Sarah on a magnesium drip, this should help her blood
pressure come down and stabilize her neurological status.” At
that phrase both Harm and Mac’s eyes widened. “Don’t
worry, I just want you to remain on bedrest…try to stay calm
and relaxed,” at that suggestion he raised an eyebrow toward
Harm. “Dad, I need you to work on being a little more laid
back; I don’t want Sarah to be upset.” Harm glanced down
to his feet with a chastised expression.
“I also want to
perform an amniocentesis on you tomorrow, Sarah. At her questioning
look he continued, “I need to collect some amniotic fluid from
around the baby to check the status of her lung maturation. We gave
you steroids about 3 weeks ago when you were in preterm labor to help
Sophie’s lungs mature. I need to know if they worked, in case,
I need to make a decision about delivery. If the lung studies are
immature, I will want to put off delivery as long as possible. The
amniocentesis involves placing a needle into the sac around Sophie to
collect the fluid. We would do this under ultrasound guidance so that
the needle stays far away from Sophie and the placenta.”
“Is
the procedure dangerous for Sophie or Mac?” Harm
questioned.
“I will give Sarah a local anesthetic so
that she should feel very little pain. The skin is cleaned with an
antiseptic solution to decrease the risk of infection, and by using
the ultrasound to guide the needle insertion we can usually prevent
any bleeding from the umbilical cord or placenta. There is a slight
risk of preterm labor after the procedure, but in this case that risk
is low and the need for the lung information out weighs that
risk.”
“Will this tell you if Sophie’s lungs
are undergrown,” asked Mac.
“No, I’m afraid
we won’t know the answer to that question until after Sophie is
born…I wish I could be more helpful. I am going to have a
neonatology colleague of mine come to talk to you about what to
expect with preterm infants…I think at this point, it is a
sure bet that Sophie is going to come early. Do you have any other
questions?” At Harm and Mac’s negative reply Dr. Abrahms
got up to leave the room. “Hang in there guys, Sophie needs you
to stay strong and optimistic,” with a smile and a wave he was
gone.
Harm climbed back onto the bed and pulled Mac close,
“I’m going to have to call the General to get tomorrow
off.”
Mac shook her head, “Harm, I’m a big
girl and it’s a simple procedure…you don’t need to
be here.”
“Not an option, Marine…you
couldn’t keep me away tomorrow, but I do promise to try and
behave,” he said with a grin. “You know patience was
never one of my virtues. Besides, Dr. Abrahms said that the
neonatologist would come by to talk to us…I have tons of
questions to ask, but I’ll try and tone it down,” he said
with ‘flyboy’ grin firmly in place. “Why don’t
you settle down here and try to get some sleep.”
“Harm,
you need to head home before you’re to tired to drive…I
worry about you staying so late.”
“I promise to
leave soon…I just miss having you in my arms…so humor
me and snuggle in for awhile,” he sighed as she did just as
instructed.
Just as she started to nod off, she looked up, “I
love you, you know…I’m glad you’re the one going
through this with me…I never imagined having a baby with
anyone else,” she smiled.
“I love you too, always
have…I never imagined the mother of my children being anyone
but you…Now close those eyes and go to sleep,” he mused
while leaning over to place a kiss on her lips.
Twenty minutes
later, he was awakened by the nurse, “Captain, you need to go
home…Sarah will be fine tonight, and you have a busy day
tomorrow.”
“I know, but neither of us sleep well when
we’re apart…I don’t suppose I can spend the
night?” he said with a smirk.
“Go home,
Captain!”
“Yes, Ma’am,” he laughed as
he rose from the bed. He leaned over to give Mac one last kiss.
“Sleep well, Marine…I love you,” was whispered as
he walked out the door.
***
CONTINUED in Part 2B
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Joy Cometh in the Morning--Part 2B/20 -- doc, 20:37:25
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Joy Cometh in the Morning--Part
2B
******
The following morning, Harm arrived by 08:00
with two bagels, a cup of coffee for him and herbal tea for Mac. As
he handed Mac her breakfast, he greeted her with a kiss and settled
into the chair. “How was your night…is your blood
pressure down…how’s the swelling…did Dr. Abrahms
come by yet…is Sally working today, because I didn’t
care for the nurse from yesterday…what time is your
procedure…did they say when…”
“Good
morning, I love you, too,” Mac interrupted with a
smile.
“What?” Harm stopped in his
tracks.
“Remember calm, in control, relaxed, patience,
toning it down…any of these ring a bell?”
“Oh
yeah, I forgot…I’ll try, I promise,” he slyly
replied. “You can answer any of the above questions at your
leisure…by the way, I have a list of questions for the
neonatologist…I was on the internet until
0200…”
“Harm!!!”
“Stopping
now…Eat your breakfast, Marine.”
***
Mac was
taken to a procedure room, to have the amniocentesis performed, at
10:00. As Dr. Abrahms finished the procedure, he smiled, “Well
that wasn’t so bad was it?”
Mac responded, “Not
really, the needle stung a bit, but overall it was nothing compared
to everything else I’ve had to go through.”
The
doctor turned towards Harm who was sitting in a chair in the corner,
still looking somewhat pale, “Captain, how are you doing? I
know that needle is really long, but Sarah did great. Based on your
response, I’d say it’s a good thing Sarah is having this
baby instead of you.”
“You can say that again,”
laughed Mac.
“Hey, no ganging up on the Dad here…I
just didn’t like seeing my girls put through that,”
grumped Harm. “Beside I think I’ll do just fine with the
delivery.”
“We’ll see,” said Mac. “I
promise not to share the fact that you nearly fainted with everyone
in JAG ops, if you bring me something good for lunch…and it
better not be a salad or Bud and Sturgis will hear the whole story of
how the big brave naval fighter pilot almost hit the floor at the
sight of a little needle.”
“I didn’t almost
hit the floor…I just needed to sit down really fast…and
that little needle was at least 6 inches long…and you are not
to even hint to Bud and Sturgis about that fact, or else…”
“Or
else what…are you going to ground me…limit my
privileges or food choices…Harm, I’m already held
captive on bedrest and the food in this joint just stinks. Besides
how am I going to talk to Bud or Sturgis…unless…I think
Harriet was going to visit this evening….”
“Mac,
I’m warning you,” menaced Harm
“All right
you two, I’m beginning to understand the admiral’s
comment about ‘patience of a saint.’ I’ll see you
two after lunch; I should have the lung maturity results by then,”
Dr. Abrahms noted as he left the room.
***
Dr. Abrahms
found the couple playing cards when he returned that afternoon.
“Who’s winning?”
Mac smirked, “Me has
usual, poker is his forte. Did you get the lab results?”
“Yes
I did, unfortunately they showed that Sophie’s lungs haven’t
matured yet…although, that’s not uncommon at this stage
in pregnancy. I had just hoped that if we had to deliver we could
take that one concern out of the equation.”
“Is there
anything else you can do to speed up the maturation?”
questioned Harm. “Maybe you could give another dose of the
steroids?”
“I really don’t want to expose
Sophie to any more steroids at this point. The literature doesn’t
support giving repetitive doses. In fact, it can do more harm than
good by causing growth failure of both weight and head size. Taking
into account that Sophie already has significant growth failure, I
really don’t want to exacerbate the situation.”
“So
what do we do?” asked Harm.
“We’ll just sit
and wait. As long as we can keep Sarah’s blood pressure down
with the magnesium and bedrest, we have the luxury of giving Sophie
time to get stronger. I’ve asked on of my neonatal colleagues
to speak with you this afternoon. Her name is Dr. Catherine Williams.
She should be able to explain some of the problems that Sophie might
have after delivery. Relax you two, I’ll touch base again this
evening before I leave.”
***
Two hours later a
tall female naval commander entered the room, “Hello Sir,
Ma’am, I’m Dr. Catherine Williams, the neonatologist or
newborn intensive doctor. Dr. Abrahms asked that I speak with you
about preterm infants. Colonel, I see from your medical record that
you’ve had quite a difficult pregnancy. May I ask if you know
if the baby will be a boy or a girl?”
“A girl,”
responded Mac, “and her name will be Sophia Elizabeth Rabb, but
we plan to call her Sophie.”
“What a beautiful
name. Before I begin, please feel free to interrupt me at anytime to
ask questions. I will describe for you what might happen if Sophie
were to be delivered today…but that doesn’t mean that I
know anything,” the doctor replied with a smile, “it just
allows me to explain what might happen should that occur. Do you mind
if I sit down?”
“Not at all,” smiled Harm.
“In fact, it might be a good idea…I have lots of
questions!”
The doctor smiled back, “that’s
great I love having a family who is involved in their child’s
care. Shall we begin?” At the couple’s affirmative nod,
she continued, “I usually start at the top of the head and work
my way down, that way we don’t forget to discuss anything. You
are now 29 weeks into your pregnancy, is that correct?”
“Yes
that’s correct,” confirmed Mac. “I’m sure
that you’ve read that despite the gestational age of 29 weeks,
that Sophie is very small for her age. Dr. Abrahms said that that
could cause additional problems especially with her lungs.”
“Yes,
I did note that Sophie does have intrauterine growth restriction.”
At Harm’s questioning look, she continued, “That just
means that she is small for her age. At 29 weeks the usual chance for
survival is well over 95%, but in Sophie’s case that survival
chance is likely lower due to possible pulmonary hypoplasia.”
“You
mean the chance for undergrown lungs?” questioned Harm. “Dr.
Abrahms said that could affect her chances to survive. Taking that
into account, what are her chances?”
“Well, that’s
hard to predict until after she’s born.” At the couple’s
frustrated gaze, she explained further, “We can’t really
tell whether Sophie’s lungs are too small yet. If we had other
stigmata of restriction from low fluid, such as, contractures of her
arms and legs, or a flat face or ears, I could confirm that her lungs
would probably also be affected. However, Sophie doesn’t have
those findings as best we can tell by ultrasound. The fact that she
doesn’t have those physical findings is encouraging because it
tells us there was enough fluid to allow movement and growth of those
body parts. We’re getting ahead of ourselves though, maybe we
better go back to our original plan and start at the top. I know that
you have been most focused on the lungs, but a lot things can affect
survival and long term outcomes.”
Harm and Mac both
shifted to get more comfortable and nodded for the doctor to
continue.
“Starting at the head, when babies are born
early they are at risk for bleeding into the fluid spaces of the
brain or the brain tissue itself.” At the couples panicked
look, she quickly noted, “Now the risk for an intraventricular
hemorrhage, or IVH, is actually relatively low at this stage. You’ll
have to excuse my medical terminology, in the NICU we live in
‘alphabet soup land,’ so if you don’t understand
our abbreviations just ask. You’ll get use to them after
awhile. As I was saying, the risk for a brain bleed at 29 weeks is
approximately 20-30%, but the risk for a severe bleed is only about
10%. The risk decreases markedly between 30 to 32 weeks gestation,
and is close to zero after 32 weeks.
“Dr. Abrahms said
that he wanted to get Mac past 32 weeks if at all possible…is
32 weeks a critical stage for most problems,” asked Harm.
“In
many ways 32 weeks is a critical stage for a lot of the complications
that can develop. Ideally we would like to get to at least 35 to 36
weeks, because than there is a chance that the baby wouldn’t
even need the NICU.”
“Dr. Abrahms did say that
that was his original goal, but he now thinks that is unlikely to
occur,” noted Mac.
“Yes with all that is going on
with your pregnancy, I seriously doubt that you’ll get to 36
weeks. Getting back to our discussion…we look for an IVH by
doing an ultrasound through the baby’s soft spot. The
ultrasound won’t hurt Sophie, but it does allow us to evaluate
for bleeding. We usually do the first ultrasound at a week of
age.”
“So if the ultrasound is normal then Sophie
won’t have any neurological problems,” stated Harm with a
pleading voice.
“Well, I can’t actually say that.
Premature infants are at risk for learning problems; although, that
risk also decreases the further along in pregnancy you get. The
additional factor for Sophie is again her small size. Her poor growth
may have also affected her brain growth, so she is going to need
close follow-up of her development throughout her first few years.”
Harm heaved a heavy sigh and nodded understanding. “The next
problem related to the brain is having periods where babies forget to
breathe.” Harm and Mac’s eyes again widened. “The
portion of the brain that controls breathing is again not fully
developed in prematures. Hence, Sophie may have periods where she
forgets to breath, we call that apnea, and when that happens her
heart rate may slow down, we call that bradycardia…or in
alphabet soup land, those are ‘A’s and B’s.’
Most preemies have these events and I just wanted to warn you before
Sophie scares you to death. She will outgrow the events before she
goes home. If she is having frequent events then we can start a
medication to help remind her to breathe…we actually use
caffeine as a stimulant.”
Harm started to laugh, “I
knew she was you daughter, only a marine would want coffee after
birth.” Mac rolled her eyes and smacked him on the arm.
“The
next topic to discuss is the lungs. Now I know that Sophie’s
lung studies were still immature when checked this morning. Let me
explain what that means…when babies are born early they don’t
make enough of a chemical called surfactant…to explain what
surfactant does…You know how when you blow up a balloon, it’s
hard to get it started, but once you do it’s easy to blow up?”
Harm and Mac both nodded ‘yes.’ “Well, surfactant
helps hold Sophie’s airways open so she can breathe
easily…without it her airways want to collapse making it
harder for Sophie to take a breath. If her lungs are immature then we
will need to place a breathing tube through her vocal cords and into
her windpipe in order to put her on a ventilator. Once we place the
breathing tube we can actually put the surfactant chemical down the
breathing tube to help her breath. Hopefully she would only need to
stay on the ventilator a few days, but might still need oxygen much
longer.
With tears in her eyes, Mac asked, “Does it hurt
her to be on the ventilator?”
“We would give her
pain meds to keep her comfortable so she can remain relaxed and allow
her lungs to heal.”
“What about if her lungs are
undergrown,” queried Harm, while grabbing for Mac’s hand
to soothe her.
“In that case, Sophie may need to remain
on the ventilator for a much longer period of time or we may need to
try a more aggressive ventilator, called an oscillator to assist her
with her breathing. Worse case scenario, neither ventilator would
work and Sophie would not survive.” At that remark, Mac began
to quietly cry and Harm pulled her closer into a hug.
Dr.
Williams gave them a few minutes to compose themselves then
continued. “The other problems that we may encounter can
include blood infections, anemia, jaundice, eye problems, feeding and
intestinal complications. Would you like me to explain these now or
come back another time?”
“No…,” Harm’s
voice cracked. “No, please continue, we need to know what
Sophie is up against.”
“Of course, I know this is
all a bit overwhelming…and while all of these problems are a
potential risk, the odds of many of them happening are quite low. The
potential for a blood infection is about 20%. Babies don’t
fight infections as well as you or I…and all of the IV lines
and ventilator tubes that we place, put the babies at risk for even
normal skin bacteria to cause an infection. Initially most sick
preemies are placed on antibiotics until we confirm that the blood
work shows no sign of infection. The antibiotics are stopped after a
couple of days if everything is negative. We will then watch Sophie
very closely for signs of infection. The signs are similar to things
that preemies do anyways, such as an increase in the ‘forget to
breathe’ spells or not tolerating feedings or worsening
breathing status. If any of these were to occur then we would draw
blood to evaluate for an infection and start antibiotics
again.”
“Wouldn’t it be better to just keep
her on antibiotics to protect her,” came Mac’s tearful
reply.
“No, actually that would put her at risk for
infections from resistant bacteria. Our goal is to get her off
antibiotics and make sure we’re careful about not exposing her
to extra bacteria. That means careful handwashing, getting all the IV
lines and breathing tubes out as soon as possible, and utilizing
breast milk to help her fight infection.”
“You
mentioned anemia, should I donate blood now for Sophie to use?”
asked Harm.
“It’s a bit to early for that just
yet. We try to be careful about how much blood we draw from the
babies. However when you only weigh a pound or two, it doesn’t
take much to drop your blood count. We often start a medication when
the blood count starts to get low to help the babies increase their
own blood production. And if we need blood, I feel very safe
utilizing the blood from the blood bank, it’s carefully
screened and comes from reliable long term blood donors.”
“Ok,
just let me know if I can donate. I’d like to do something to
help,” sighed Harm.
“I understand, it is very
frustrating to stand by and watch, but just being there for Sophie
day-in and day-out is often therapy enough,” smiled the doctor.
“Colonel, do plan to breast feed?”
“I really
wanted to breast feed, but is that even possible given how sick
Sophie is likely to be?”
“Absolutely…initially
Sophie will be fed through her IV with a solution that contains
sugars, fats and proteins… but once she is ready to begin
feedings into her gut, we prefer to use breast milk.”
“How
is that possible, won’t she be too little?”
“To
start with, we’ll feed Sophie through a tube inserted into her
nose and down into her stomach…once she is a little older then
we will begin allowing her to try feeding by mouth. Babies don’t
really know how to feed by mouth until at least 32 weeks, and don’t
do it well until 34 to 36 weeks. Feeding is usually what keeps them
in the hospital the longest and is the most frustrating for
parents.”
“But if she can’t feed by mouth,
then how do I breast feed her?”
“We will have you
start pumping your breasts after delivery. It takes 3-4 days for your
milk to come in so don’t get discouraged. We will feed Sophie
what you provide. Breast milk is the one medication that only you can
give your baby and it is one of the most important since preemies
tolerate it best. It also helps to prevent blood and intestinal
infections. One of the ways to help with your milk supply is do
something called ‘kangaroo care.’ Once Sophie’s
breathing has stabilized, we’ll let you hold her skin-to-skin.
We’ll place the baby on your chest under your clothes. Your
body temperature helps to keep her warm and the bonding helps Sophie
to get better and grow quicker. If she happens to find your breast
while she’s there…you and she can have a ‘good
time.’”
“I know I would,” laughed
Harm. Mac turned into Harm and blushed feverishly.
The doctor
chuckled, “You don’t get out of this Dad…we allow
fathers to ‘kangaroo’ too. You just don’t have to
breast feed.” Harm blushed in return, while it was Mac’s
turn to laugh.
“Most of the rest of the problems are
pretty routine baby issues, such as jaundice. If you’ve ever
been around a newborn, you’ve noticed that their skin gets
yellow…that’s jaundice. All babies get jaundiced,
preemies are just a little slower at clearing it…so Sophie
will get to sunbathe under some special lights…that should
take care of the problem. Because she will be small and not have a
lot of fat to keep her warm, she’ll be placed in an incubator
to keep her temperature up and help her grow. I would expect her to
be in the hospital at least 7 to 8 weeks, maybe longer depending on
how she does. Do you have any other questions?”
“Will
she be OK long term after she comes home or can we expect her to have
significant problems?” asked Harm.
“When a baby is
born this early they are at risk for long term problems. These might
include asthma, learning disabilities, cerebral palsy, or vision and
hearing problems. In most instances, we don’t know if these are
going to occur when a baby leaves the hospital. Certain things can
increase the risk of these complications; such as asthma after being
on a ventilator, or cerebral palsy and learning disabilities with a
brain bleed. But even if these problems occur in the NICU, Sophie may
still do well long term. She will just needs to be followed closely
by her pediatrician for developmental milestones. In addition, we run
a follow-up clinic here at Bethesda. We like to follow all the small
preemies born at less than 3 pounds-5 ounces, to ensure that their
development is progressing appropriately. If we see delays, then we
refer the babies for therapies as indicated. Therapy won’t make
the problems go away, but it will help both you and Sophie learn how
best to deal with them.”
“Any other questions?”
At the couple’s negative reply, the doctor rose from the chair.
“At this point I like to give the parents a tour of the NICU.
It’s kind of nice to see all the equipment before it’s
actually on your baby…less scary that way. Colonel, since
you’re on bedrest I’m afraid you won’t be able to
come. Captain, are you interested in a tour?”
“Sure,”
sighed Harm with a nervous voice. “Mac, do you care if I
go?”
“Not at all, you can come back and give me a
report,” she smiled.
Harm started for the door, but then
turned back to give Mac a quick kiss. “I love you…I’ll
be right back…sure you’re OK?”
“Go
ahead Dad, I’ll be waiting…Love you, too.”
***
Harm
came back 20 minutes later, pensive and quiet. “Hey, how was
the tour?” asked Mac.
“Scary,” was his
overwhelmed reply as he slid onto the bed and pulled her into a hug.
“The babies are so small, and they’re hooked up to all
kinds of monitors and equipment. There are alarms going off
constantly. Mac, do you think Sophie can survive all this…because
I don’t know if I can. I was terrified in there…the
doctors and nurses just go about their business as if everything’s
normal…but I…”
“I know Harm…but
we’ll get through this together. We have to for Sophie’s
sake. We’re not giving up on our ‘princess,’
remember.”
“Yeah, I do…thanks, sweetheart,”
he murmured into her hair as he kissed the top of her head. Mac
cuddled in close as they both contemplated the events of their
stressful day.
***End of Flashback***
Harm was
again jostled from his reminiscing by the same petty officer. “Sir,
thank you for the use of the chair,” he nodded as he placed it
back under Harm’s table.
“Heading home, Petty
Officer,” smiled Harm.
“Yes Sir, the tribe is
getting restless. I need to get them home to bed…thankfully
the cafeteria is still standing. Thank you again, Sir…have a
nice evening.”
Harm nodded back, “Same to you,
Petty Officer.”
Harm glanced at his watch and noted that
he had now been gone for an hour. Mac was going kill him. He got up
quickly to get the requested ice cream and headed upstairs. He passed
Sally at the nurse’s station on the way to Mac’s room,
“You’re here late tonight.”
“Yes Sir, we
were short staffed and the paperwork never seems to end. Have a nice
evening, Captain.”
Harm breezed into the room
exclaiming, “Mac, I got chocolate ice cream with chocolate
fudge sauce and chocolate sprinkles. That should be enough chocolate
to send even you into sugar overload…” the comment died
on his lips as he noticed that Mac appeared to be sleeping. As he
quietly approached the bed, he whispered, “Mac, are you
asleep?”
“Haaarm,” came Mac slurred
response. “I don’t…feel…very…good.”
“What’s
wrong, sweetheart? Should I get the nurse?” The words were
barely out of his mouth, when Mac’s monitor began to alarm for
a low breathing rate. To his horror, Mac’s arms and legs began
to jerk rhythmically as her body thrashed around in the bed. As he
ran closer to the bed, the fetal monitor that assessed Sophie’s
heart rate began to blare as the audible signal for the heart rate
began to slow. He momentarily froze at the scene before him, ‘how
could this be happening now…what else could possibly go
wrong.’ As he reached for the call button to summon the nurse,
Sally came running into the room.
“Captain, what’s
going on…” Sally began but instantly stopped when she
noted the look of panic on his face. She quickly ran to the bed and
maneuvered it flat as she pulled the oxygen mask from the
wall.
Sally yelled into the call remote, “Call a code
and get anesthesia and Dr. Abrahms in here stat…the colonel’s
seizing, I need Dilantin and the code cart in here now…Call
the OR and set-up for an emergency C-section!”
Harm
backed away from the bed in shock as medical personnel rushed into
the room. Words began to blur, “Seizure…fetal
distress…oxygen…intubate…need to move now…crash
section….” One of the staff ushered him quickly from the
room to wait in the hall, “I’m sorry Sir, but you’ll
need to stay out of the way. Someone will be with you
shortly.”
“Wha…What’s…happening…are
they going to be OK?” he whispered aghast.
“Sir, I
really can’t answer your questions. You’ll have to wait
for Dr. Abrahms.”
At that moment, Dr Abrahms hurried to
Harm’s side. “Harm we’re going to have to perform
an emergency C-section. Someone will be out in a minute with a
consent to sign.”
“But…what’s going
on…I…I don’t understand…I…I…didn’t
think you wanted…to deliver Sophie yet.”
“Harm,
listen I don’t have a lot of time to explain. Sarah is having a
seizure due to the preeclampsia. I need to deliver the baby to get
the preeclampsia under control…and Sophie’s heart rate
is dangerously low…if we don’t get her out we might lose
both of them…I’m sorry, but I have to go!”
Harm
nodded his assent and gaped as he watched Mac being rushed from the
room to the surgical suites. She had a breathing tube in place in her
mouth and medical staff surrounding the bed as orders were barked at
a furious pace.
Sally appeared moments later with a surgical
consent for him to sign. He scribbled his barely legible name to the
form at the indicated line and then slowly backed up into the hallway
and slid down the nearest wall. With tears in his eyes he looked down
into the ice cream cup that he still clutched in his hand and with
shaking breaths began to sob.
Sally had grabbed Mac’s
hospital chart and started down the hall when she looked up to see
Harm collapse. She quickly opened the chart to locate the contact
number and dialed. “Admiral Sir, you need to come to the
hospital immediately…the Captain is going to need you.”